Welcome
to the home of MEActionUK
This is a
new online organisation. We started off as a mailing list; a group of people
that wanted to discuss the issues, news, research and views surrounding
the complex and debilitating illness known as chronic Myalgic
Encephalomyelitis.
As you will
see from looking further into this web site, we provide a comprehensive
service and cover all the relevant and topical subjects of interest -
information you will not usually find in any mainstream subscription based
publication.
We hope to
see a positive and informed change in the way sufferers are treated. The
aim of this organisation is to share views and information about the issues
that will affect sufferers. Pooling our knowledge, views and individual
skills will help us all be a part of that change. With the web site we
are hoping to spread awareness and provide help to those that need it.
We are trying
to add to the hope that one day, chronic Myalgic Encephalomyelitis will
be correctly recognised as a physiological illness and disability in its
own right and that patients will be treated with respect and understanding.
To subscribe
to MEActionUK surf to the signing up site
and type in your details. You will be sent a welcoming e-mail. You will
then be able to participate in the discussion. Please
feel free to join in.
Normal mailing
list rules apply : the only attachments allowed are plain text (ascii/iso-8859-1),
and posts may not be forwarded without the author's permission. The list
moderators are Stephen Ralph, Laura Jones John Breward and Del Kennedy.
To subscribe to this list you can also click
here.
There's also a smaller meeting room for less formal and sometimes off
topic discussion. This is a list called MyalgicE, where a bit of humour
and chat is welcome. And, so are web page
or image file attachments (size of attachment is on your own conscience).
There aren't any rules about forwarding from this list. To join MyalgicE,
click
here.
Our off-line,
real-world presence is provided by MEUKpipeline, a team of volunteers
with PC's, printers, and the determination to make a difference. If you'd
like to help us print & post to the real world, click here.
For those
who want to discuss Fibromyalgia syndrome, or chat to other fibro sufferers,
there's a small, friendly and informal chat group called FMS-UK, owned
by Abi Gurden. Click here
to subscribe to FMS-UK.
Finally,
there is a padded cell called MEvanguard where the more paranoid amongst
our number can discuss their next hair-brained subversive scheme in private.
Membership of this list is arranged by men in white coats. Please contact
the editors for further detail. :o)
There's
plenty of room for other special interest groups in this Conference Centre
- just have a word with the editors:
Del
Kennedy and
Stephen Ralph.
We
hope you find the information here both helpful and interesting.
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